Friday, April 29, 2016

Introducing my new baby... 3.5 years in the making!

I am incredibly excited to tell you guys that my book is live!!!!  It was officially published on April 15th. I still can't get over when I go to the Amazon page and click "Look Inside", it's MY words (along with my coauthors, of course :)), my design, everything.

It's 535 pages that contain everything I know about hypothalamic amenorrhea and recovery, getting pregnant, trying to conceive again, and life afterwards. I hope so much that women who are searching for answers about their missing period find it and *their* life worth living.




The book's website is at noperiodnowwhat.com, and there are links to purchase paperbacks through the printer, Createspace, which seems to be best (read least expensive) for purchasers outside the US, or through Amazon and ebooks (epub, pdf, and Kindle). If you do purchase a paperback, email the receipt to paperback@noperiodnowwhat.com and I will send a code to download the ebook for $3.

Note that the Createspace shipping times have been much faster than they estimate - in the US it's been about a week faster, Canada has generally been taking 3-4 days, and Australia was 12 days (vs. the 2.5 months quoted!!)

I'm also thrilled that the feedback I've gotten so far is exactly what I had hoped.
"The authors have really done their research and the information provided is well documented but also very approachable to the “non-science” types. There’s a perfect balance between the hard science facts and the personal stories. It's written in a way that makes it easy for you to imagine that you’re having a good conversation with a well-educated and concerned friend rather than reading through a stuffy reference book."

"No Period. Now What? is awesome. I’ve never seen a book with such a balance of science and humanity. I love that every single page is speckled with our stories. It’s like reading my own diary. And then it’s all backed up with more research that I ever knew existed."

"I have to say, in the few chapters I've read so far it has been the best reading material for HA. I lost my period about 18 months now and I am at the stage where eating and gaining weight is absolutely terrifying for me. I went from 184 to 118 to currently 134 and I want to train for the NYC marathon this summer. Reading about your journey and the other women's has really hit home. I hope I have the strength one day to make myself healthy again. Just know that this book is very special,  especially for people like me whose doctors, nutritionists, etc have said I was ok without my period so essentially gave me no guidance."

Tuesday, February 23, 2016

No Period. Now What?

Guess what arrived on my doorstep today???





These are proof copies, there are a few more adjustments to make, but we'll be going live with a new website and BOOK ORDERS by the end of next month.  I am SO excited!!  When I started this project, I thought, "Oh, it'll take me a year..." Well, here we are, three years six months 17 days later (not that anyone's counting).

Coming soon at: https://www.createspace.com/5797901

Saturday, July 25, 2015

Update!!!

Eeeek, okay it's been more than a year since I've posted.  Whew!  In that year, we have all but completed the book - our working title is "No Period. Now What?" and we will be unveiling the cover SOON!  Our plan is that editing and copyediting will be completed by the end of August, then we'll send some copies out for review and proofreading... and publish not too long after that.

In the meantime, there are over 130 pages that we've cut out of the book... so I'm going to start sharing some of that on here, and on our book's site once we have that up and running.

Here's a bit I just cut out of a chapter tonight...

Nico has always asked on the Board, “Do you want to be thin, or pregnant?” It is a choice. Not one that everyone has to make, but it is the bottom line for those of us whose systems are sensitive enough to trigger HA when we are at an energy deficit or overexercising (and stressed). What’s more important to you? Do you want to improve your bone density, heart function, and brain function by getting your period? Or do you want to continue rigid eating and exercise habits and use treatment to possibly get pregnant—then end up right back where you started?


Commentary from Fitty: Whoaaa, hold up a minute. “ . . . sensitive enough to trigger HA”? OK, so while I do agree that there are some who may be sensitive to HA due to genetics, I also believe there may be more women similar to me. I was NOT sensitive to HA. I worked pretty darn hard to create the hole I dug . . . and it was deep. In addition, the unstable and chaotic relationship with my LOWMI (loved one with mental illness) who has schizophrenia and bipolar disorder, added a major stressor cherry right on top! So before some of you decide to run with the “I have a sensitive system and that’s why I have HA” baton, please know that many of us worked relentlessly to get there. If you happen to be a little hardheaded like I am, take the time for a good self-evaluation. It can be helpful to consider that you too may have pushed pretty intensely to get to where you are. By recognizing this, you can now apply that same effort and intensity to get back out!

Tuesday, July 29, 2014

Interesting fact of the day!

I'm in the midst of analyzing data from my surveys to add to our book on HA recovery (more on that soon!!!)

I was looking at what percentage responded to Provera by getting a bleed, and how long after the last pill that bleed typically was.  I also decided to look at whether bleeding in response to Provera predicted recovery of natural cycles.

Answers:

*  18% (48 / 256) responded to Provera the first time they tried it (most likely while working towards getting a diagnosis).
*  26% (31/119) responded to a subsequent Provera challenge.

*  The median time to response was three days after the last pill
*  95% bled by five days after the last pill,
*  All but one (out of 86 reporting time to bleed) responded by eight days after the last pill

The interesting fact of the day is that responding to Provera in no way predicted recovery of natural periods!

* 46% of those who bled in response to Provera restored natural cycles (prior to moving to treatment to get pregnant)
* 47% of those who did not bleed resumed natural cycles.

For all intents and purposes, the same.  I would have expected that bleeding in response to Provera would strongly predict regaining natural cycles.  Apparently not!



Thursday, May 29, 2014

What's a few extra pounds?

I'm knee-deep (maybe more like neck-deep) in working on my book on hypothalamic amenorrhea recovery; currently working on chapter 23 out of 30, so getting closer and closer...*huge grin*.

A couple of months ago I noticed that I was feeling HA-like symptoms again, despite cycling regularly ever since I weaned baby #3 about a year ago.  I do a lot of work late at night, and I was constantly feeling cold, having to get a sweater to put on, despite keeping the house at a fairly balmy 70 degrees.

My scale broke a while ago and I never bothered to replace it, so I had no idea how much I weighed.  I did a quick check at the gym one day (I am currently spending 45 minutes a week there, while #2 has his gymnastics class) and was surprised (and yet not) to find that I was at a mere 124lbs.  That is pretty much what my weight was when I was at the height of HA - I dropped to 120 for about five seconds, but 124 was my stable weight.

Things are VERY different now than my HA days - I eat whatever I feel like and get a total of about two hours of high intensity exercise a week (writing a book is not conducive to exercise!) as opposed to limiting myself to 1500 calories with 2-3 hours of daily exercise.

But, between my weight being lower than I expected and feeling cold all the time (and hungry at night too), I was clearly not eating enough.  So I added ice cream, bigger portions, whole milk to my cocoa (which has become my new addiction) and weighed myself about a month later, back up to my standard of 128.  Whew.

Today I hopped on the scale again, another six or so weeks later, and now up to 132. My initial reaction was, "gulp", but then as I thought about it more, A) I'm nice and toasty warm, I've been in short sleeves the last few nights - and the temperature in the house has been exactly the same, B) I'm not nearly as hungry in the evenings, and C) I'm not even noticing my clothes fitting differently, and D) my cycle is MUCH more normal (back to a nice 12-day LP).  So who the heck cares? On top of all the other positives, I actually think my face looks a bit fuller = fewer lines = younger so there's that too.

I'll take it!


Thursday, September 19, 2013

Menstrual cycle abnormalities in exercising women, including me.

So  much great information on HA is available in the medical literature.  it really is a shame that your average OB is not better educated.

My friend was recently told that she had less than a 50% chance of regaining cycles if she gained weight / cut exercise.  Way to pull a stat out of where the sun doesn't shine doctor!

Here's an article where they followed women with FHA for an average of eight! years.  The doctor counselled them on the advisability of gaining some weight and cutting exercise to help restore cycles and improve bone mass density.  70% of the women started cycling again.

Those 70% gained between 6.5 - 28 pounds.  Cycles were regained for the most part between years 1 and 2 of changes.  (Keep in mind that these were gradual changes and many of the women were on either HRT or birth control pills, with a break every 6 months or year to see if they were cycling).

Take a guess as to the weight change of the women who did not start cycling again.  Surprise surprise, either no change or a decrease of a pound or two.  Unfortunately they don't mention changes in exercise.

I also think that the cycles could have resumed more quickly had the weight gain / exercise changes been made in a shorter timeframe.  Most of these women were not trying to conceive at the time the study started, so had less incentive to restore cycles in a short timeframe.

This is another interesting article where three menstrual cycles were examined in either sedentary women, or "moderate exercisers".  (On average, running 20 miles per week plus 5 hours of other, nonspecified, exercise).

In the sedentary women, 91% of menstrual cycles were ovulatory, 9% (all in one woman) had a luteal phase defect.  In the exercising women, 45% were ovulatory, 43% had a luteal phase defect, and 12% were anovulatory.

There was no significant difference in energy availability between the ovulatory and LPD cycles in the exercising women (although both were lower than the sedentary women).  Again, though, I bet you can predict what the energy availability looked like in the anovulatory cycles... yup - MUCH lower.  These women had an average energy balance of about -1000 calories per day, and also ate only about 50% as much fat as the others.

So even in recreational exercisers who are cycling, the energy deficit can cause cycle issues.

Speaking of luteal phase (LP) defects, I now have four postpartum periods to compare in my own life.  In all three live birth cases, my first cycle was while still breastfeeding, but I weaned right around the time the second started.

After #1 was born my LPs were as follows (P = I used Prometrium 200mg 1x/day) (bmi 21.9):
4, 8, 7, 16P, BFP

After #2 (bmi 20.7):
6, 6, 7, 9, 9, 9, 10, 10, BFP [

After my mc (bmi 21):
7, 14P, 14P, 14P, 14P, 10, 12, 13P, 14P, 18P, 17P, 12

After #3 (bmi 20.3):
10, 10, 11, 12, 12, 12

Guess what the difference is after #3 when my LPs have been much better and gotten longer much more quickly - VERY LITTLE EXERCISE!

Now, I ride my bike maybe once a week and play ice hockey once a week.  A fair bit of walking bc of chasing after the kids, and I lift weights once in a blue moon.

After #1 and 2 were born I was playing hockey 2-3x/week, biking to/from work, and lifting weights 2x/week.

More food for thought.  Pun intended ;)

Sunday, September 15, 2013

Energy availability and exercise

I've been doing a lot of research for my upcoming book and have come across a lot of really fascinating information that is just not very well publicized.  So I'm going to take a little time out of writing every few days and share some of the info here.

The first article is this one:  Energy availability in athletes, by Anne Loucks et al.

So here are some of the tidbits from this article (it's a review, so they're other studies that are referenced. I have not read each individual study yet.)

In studies where men or women were in "room calorimeters" (basically a device where they truly can measure every scrap of energy that you're using), they found that exercise was NOT compensated for by an increase in hunger signals, which meant that it was extremely easy to operate with an "energy availability" that was too low to sustain normal physiological processes = reproductive system shut down and all the other negative effects of hypothalamic amenorrhea. This is because exercise actually produces a hunger suppressive signal.

They did note that there ARE some people for whom hunger signals increase with ongoing exercise, they called these "compensators" vs. those for whom hunger signals did not increase, "non-compensators".  This difference could partially explain the difference between women with similar BMI and exercise, one who menstruates and the other who does not - nothing overt, but one IS adequately fueling her body and exercise, and the other is not.

Also, the slowdown of physiological processes happens immediately when not enough energy is being consumed; in the same experiment, they showed that the resting energy expenditure was decreased by 90 cal a day when in an energy deficit. So one day of negative energy balance isn't going to throw everything off, but throw in three or four in a row, and you're not doing your body any favors.

It explains so much about why you have to over-feed to actually recover from what you've done to your body. All those systems that have been shut down have to ramp up again, and use more and more energy as they do - and reproduction comes last!. So keep on eating, and sitting on the couch!!! (or if you do exercise, don't rely on your hunger signals to compensate for that exercise, you probably need to eat more than you think to make up for it.)

Wednesday, May 08, 2013

HA survey...

Edited... there's still time... everything takes me longer than I think it will these days.  I'll update this post when I've closed the survey and started the analysis.  I only need a few more responses to get to 250 which I think is a nice number - so if you see this and haven't taken the survey yet, there's no time like today :)

**********************************************

If you're reading this, have or had hypothalamic amenorrhea, and have either made changes towards recovery, recovered, or gotten pregnant, I'd love if you would participate in the survey I'm doing for my book.  It will take probably 30-40 minutes.

You can either use the link below, or send me an email at noperiodbaby@gmail.com with an email address to send the survey to.  The link is supposed to save your work as you go along so that you can re-enter and finish at any time, but it's been somewhat unreliable.  So if you think you'd work on the survey over a few sessions it would be best to do it via a link I can send through email, which will definitely save.

I'm planning on starting my analysis on 5/13, which I realize is just a few short days away - so if you can take the survey before then that would be marvellous.

Thanks so much!!!
Nico

HA Survey link

Friday, November 23, 2012

Backstory

I was trying to remember some of the thoughts and feelings I had way back before being diagnosed with HA, and remembered the very first blog I started, A Nickel for My Thoughts (because my name is Nicola, get it?  ha ha ha).  Went back to it, and there were a few posts that added more backstory to this blog, so I decided to copy them over here so everything's in one place.  So if you subscribe to this blog through a feed reader or email you might see the posts popping up - they're all from almost eight years ago.  Hard to believe it's been that long!

They start with this one if you're interested in reading through them.

Monday, September 10, 2012

HA and weight. Which turned into my entire ttc history.

I've been thinking a lot about my weight over the past years as I'm putting together the survey for my book.  So I thought I'd post my weight history for as long as I can remember, as I think it's interesting, and perhaps useful for others going through this.  (Note, I'm about 5'6").

I first got my period at age 14.  Kinda late.  It was the summer after freshman year, I was babysitting for a family up in Maine and my best friend happened to be visiting.  Fortuitous if I wasn't going to have my mom around, to have someone else I could confide in.  I have no idea what I weighed at the time.

My cycles were fairly irregular, and I remember my periods lasting FOR.EVER.  Each was at least 10 days of bleeding.  And I never knew when they were coming, although as I think back on it, I feel like it was about every 5-6 weeks or so.

Then at around 18 I started on birth control pills for a short while, but wasn't very reliable about taking them, so ended up with Norplant (the rods that go in your arm) after a couple of years.  Loved it.  Especially loved that I stopped getting my period a few months in.  I think my weight at the time was in the mid 120's.  That was when I was about 20.  In college I started exercising a bit - I'd go to the gym and use the stairmaster (doing the classic - level 10 but holding my weight up on my wrists. ha ha.) and would run occasionally.

The Norplant lasted five years, I met my husband, and we got married.  At some point I had them taken out and went on the pill.  I worked for a few years, then went to graduate school.  And this is when I really started paying attention to what I weighed.  I guess over time my weight had gradually trended upwards until I was sitting at about 139 in grad school.  Which was fine, but I was never particularly happy with my love handles and the bit of cellulite I had developed.  Went on a few "diets" but could never be particularly consistent about it because I just loved food too much, particularly junk food.  If I could be healthy and live on chocolate and chips I totally would!  During this time I became much more active than I had ever been before - started playing ice hockey a few times a week, volleyball, weight lifting, squash - I loved being and feeling so fit!

Then, some of the post docs in my lab whom I hung out with a lot decided they needed to lose some weight.  And I thought I would join them. Finally get rid of those love handles, and "get healthy" in preparation for having a baby.  Because I'd seen so many places that if you were overweight you should lose weight to be more fertile, and so I figured that was true for me too.  They were men, quite a bit bigger than me, and were aiming to eat 1500 calories per day.  I figured that would be a good goal for me too, as I was smaller than them but exercising more.  So I started an Excel file (I have one for everything!) where I would track my calories for each day.  With all the exercise I was doing, my net calories were around 7-800.

And I lost weight.  BOY, did I lose weight.  I think I lost 12 pounds in the first month I was doing this, then a few more after that.  Which got me down to my low weight of 120.  It was so addictive seeing that number on the scale go down!  I loved how I looked (I had a six pack! and you could see the vein in my bicep!)  And then I went off the pill because we decided we were ready to have a baby.  And my body just laughed at me.

I went to see my PCP, and then my OB/GYN.  Eventually I was diagnosed with HA, and my OB did tell me to cut down on exercise.  I had gained back to about 133 by that point, but still no period.  This was about six months after going off the pill.  Then went to see an RE, who was very doubtful that I would either start to cycle on my own or that Clomid would work for me.  Up to 136 (Jan '05).

Two months later I got my period while on vacation! Had a couple of ultrasounds after I got back and had a 14mm follicle that didn't grow in two days.  So we started on the injectable/IUI rollercoaster.  Over that period my weight kept going up.  Four BFN cycles (just reread all my archives - had forgotten how hard it all was).  Gained some more weight up to about 140lbs (yes, back to where I started!).

After the four BFNs we were going to move on to IVF, but not for a couple of months because of insurance.      Decided not to take bcp until we knew what our IVF schedule was.  Amazingly, ovulated on my own in 12/05 and got a BFP!!  143 lbs at the start of my pregnancy.

Gained 17lbs by 30 weeks and then another 20 in the last 10 weeks (mostly water), for a grand total of 37lbs and final pg weight of 180.

By six months postpartum was back down to 136 - could have gone lower but didn't want to for fear of having HA again.

Didn't get HA, started cycling naturally at 11 months postpartum, BFP on my third cycle trying (using progesterone to lengthen my LP from 8 days to 14+), starting weight for this pregnancy was 136.

Gained a total of 25lbs, final pg weight of 161.

Again no trouble losing the pg weight, got down to about 128 before deciding once again that I didn't want to lose more in case we did decide to have a third child, once again didn't want HA.

Started cycling naturally at 10 months postpartum.  Started trying for a third child at 18 months PP and got pregnant on my first! cycle.  Starting weight of 128.  Found out our baby didn't make it at 10w.  Had gained up to 133.

Lost that over time, kept on trying for a year, finally moved on to IVF.  Lucky enough to get a BFP on our first cycle.  Starting weight 127.

Gained a total of 30lbs this time, to 157lbs.  Lost 10lbs by delivering Truffle, lost another 10lbs by a week later, and then have been losing about a pound a week since.

And now we get to the real point of this post.  I'm now down below my pre-pg weight, at about 125.  And given that we're probably not going to have another child, I'm finding that my motivation to keep my weight up is somewhat lacking, and in fact, there is a not insignificant part of me that is once again liking seeing that number going down.  Amazing that it's still there after all these years.  I have been trying to add in some more snacks so that I dont' lose too much more weight, I think this is a good place for me to be especially as I'm not exercising that much any more.  But still.  I think it's something that those of us who got ourselves in the way of HA will always struggle with to some degree.  We can push those thoughts away for the most part, but not completely.

Have you been able to completely banish them?


Monday, August 06, 2012

Hypothalamic Amenorrhea BFP update


I posted a summary of the stats I've been tracking for HA pregnancies from the Fertile Thoughts Hypothalamic Amenorrhea thread last year.  Figured it was about time I updated!  So here are the data including the additional year.  The overall percentages haven't changed by much. However, when you look at just the pregnancies since my last update (109 in total, see below), there are some interesting trends. 

First, the grand totals:

Pregnancies:  361

First post-HA pregnancy: 279 pg
Natural: 72 (26%)
Clomid: 82 (29%)
Clomid + injectables: 6 (2%)
Injectables: 68 (24%)
IVF: 45 (16%)
Other: 6 (2%) - GnRh pump (2), adoption (3), zoloft (1)

HA vets - subsequent pregnancies: 82 pg
Natural: 63 (77%)
Clomid: 4 (5%)
Injectables: 7 (9%)
IVF: 7 (9%)

m/c rate: 19%

Total pregnancies in the past year: 109

First post-HA pregnancy: 83 pg
Natural: 14 (17%)
Clomid: 31 (37%)
Injectables: 19 (23%)
IVF: 19 (23%)
GnRH pump: 1

HA vets - subsequent pregnancies: 26 pg
Natural: 20 (77%)
Clomid: 1 (4%)
Injectables: 1 (4%)
IVF: 4 (15%) - three with first from IVF, one with first two natural (that would be me!)

19 miscarriages, for a m/c rate of 17%. 

So there are a couple of interesting points in comparing the overall data with those from this past year.  First, Clomid usage seems to have increased quite a bit - perhaps because people have seen that it does work quite well with HA and are more likely to try it?  Second, that the number of people doing IVF has increased quite a bit as well.  My impression is that it's due at least in part to the high cost of injectable cycles, with people thinking they'll get more bang for their buck (higher success rate) with IVF.

It's not statistically significant, but in this past year the miscarriage rate (per cycle) from IVF was 27% (6/19), as compared to right around 15% for pregnancies that were natural (5/34), from Clomid (5/32), or injects (3/20).  Of those who miscarried after IVF (four women), one became pregnant naturally, one with Clomid, and one on a combo natural/FET cycle (with twins so both the natural and FET originally implanted, but subsequently lost one).

Notes:
1. First post-HA pregnancy is not necessarily a first pregnancy as some develop HA after having a child already due to overexercise / underfueling.
2. I have grouped Femara and Clomid (including the extended clomid protocol) together in these stats
3. Due to miscarriages, some people are represented multiple times
4. Injectables is usually Menopur as with HA we need LH in addition to FSH to have the best response to injectable cycles. Some people have used FSH + hcg or Luveris. FSH alone is more likely to lead to cycle cancellation.

Hypothalamic Amenorrhea book!

I stopped working about a month before little C was born.  I had been working two days a week for a pharmaceutical company, managing testing for clinical studies.  It brought in a paycheck and got me some adult interaction that definitely helped me be more patient on the days I was home with the kids - but the job itself wasn't particularly fulfilling.  Didn't make any use of my PhD, it was mostly just organizing and staying on top of samples and labs.  Good for then but not a long term career.  So there was no question for me when C arrived that I would look to go back - maybe eventually, but not for at least a year.

I have toyed with the idea of going back to school - med school specifically, with the idea of becoming a reproductive endocrinologist, and getting to help women get pregnant, because I have found through my years posting on this blog, and even more so, on the hypothalamic amenorrhea thread at Fertile Thoughts, that the joy I get from supporting women in their quest to become mothers is incredibly fulfilling.  But honestly, med school?  Who am I kidding?  I'd have to take the MCAT again, and while I did well on it when I took it, gulp, 15 year ago, I'd need to do a lot of studying to get  back there.  Then four years of med school, residency, an OB fellowship and then a RE fellowship - I'm looking at being around fifty before I'd be done.  And yes, I could do it - but I think that it would come at a high cost to my family and I just don't think that is the right road to take.

So I've been mulling over what I could do instead.  What could I do to continue to help women with HA achieve their dreams to become mothers?  Get the message out!  It does seem that magazines and other blogs are starting to talk about how overexercise and undereating, particularly in combination, are not as healthy as we have all been led to believe they are, and are particularly detrimental to fertility.  Finally!

What I think I can add to the conversation, and would be worthy of writing a book about, is data about HA from the large cohort of women who have posted on the fertilethoughts HA thread over the years.  I have collated information on 325 pregnancies to date, and I'm sure there are more from "vets" that I am unaware of.  So my plan is to put together a comprehensive survey and ask those women (and perhaps others who might find such a survey through my blog or other places I advertise) for a bit of their time to help put numbers on things like the amount of time it takes to get cycles back naturally, the likelihood of pregnancy at different BMIs, what changes in exercise habits they had to make, that kind of thing.

I have a basic outline put together, and will post that  soon, which will include the questions I'm trying to answer with my survey, and the various topics I think are worth covering (questions that come up time and time again on the board).  I'd love any feedback you have to offer, now and when I post those!

Tuesday, May 01, 2012

Birth story part 2


Part 1 here...

We were let into the labor and delivery unit, and sat in the front hallway for a few minutes while they got things ready for us.  Then back to triage.  Again, waaaay more relaxed than with Timmy's labor, as by the time I got dressed in the hospital gown with him and up on the table I was ready to push.  This time, (actually I'm not sure it was better!) I got to answer a zillion questions and get hooked up to monitors.  Sat and 'relaxed' for a while as they got a good trace on Truffle and my contractions.  It was somewhat hard to do sitting up in the bed; better once I had Mark put the head of the bed down a bit.  My uterus was being too squished when I was more upright, very uncomfortable.

The on-call doc came in after about 15 min, and I asked if we should start the IV antibiotics for the GBS.  She agreed that would probably be a good idea, so that got started maybe 10-15 minutes later.  Contractions were somewhere between 1-3 minutes apart, and 30-50 sec long.

My sense of what happened in what order is a little spotty, but these are some of the things we discussed... Doc talked about checking my cervix; I asked if that might cause any issues given that my water had broken and I was GBS positive.  She said probably not as we were starting the antibiotics already.  But she didn't end up doing it in triage.  They confirmed again I was not planning on an epidural, we discussed that we didn't want the eye ointment or Hep B shot, no circumcision for Cameron.  Also that I had signed the forms 'consenting' to a vaginal birth and a VBAC.  Funny that you have to consent to those :)

After what seemed forever, we finally moved down to the delivery room.  They asked if I was okay to walk, and I figured, "why not?".  So I did.  I think I had to stop walking with the contractions, but was still getting through them fine, just closing my eyes and releasing as much tension as I could.

In the delivery room, I got hooked up to monitors again, and then repositioned when the nurse realized how I was going to lie down (in the position recommended by the Bradley method - on my right side, left leg bent and supported by a pillow, left arm supported by a pillow, and right arm behind me.  She asked if that was how I slept and I said yes - didn't really want to get into it.)  Somehow I remember it feeling much more comfortable when I did it at home when I was in labor with Timmy, on our waterbed :)  Still able to relax through the contractions fairly well.

More people came in to talk to me - the anesthesiologist, who said that they fully supported a natural birth, but she wanted to get consent for other forms of anesthesia just in case, so I had to sign a form for an epidural, spinal, or general anesthesia, depending on what might happen.  I was rather amused, they kept talking to me and I would have to say, "hold on" while I was having a contraction.  (Timing them on my phone all along, it was actually a nice thing to have to focus on).

The on-call doc came back, and said they didn't need to check my cervix right away because they would use the 1cm I was dilated at my morning doctor's appointment as my baseline.  She was also talking about how often when someone's water breaks labor doesn't really get started so they might need to use pitocin to get things going.  And they would check me in a few hours and see how I was progressing, and maybe if I wasn't too far along they would give me some pitocin.  I didn't bother to say at that point that I'd rather not, I figured we could cross that bridge if we got to it.  I found it very amusing that she was telling me I wasn't in labor when my contractions were about a minute and a half between, and 40-60 sec long.  I think this was maybe around 3am, so about an hour after we had arrived.

Finally, everyone just left me alone, and I was lying on the bed, doing my best to keep relaxed through each contraction.  At about 3:20am I really had to pee, so got up and went to the bathroom.  I stopped timing for about 25 minutes at this point, which included going to the bathroom and having them put the cordless monitors on me.  I guess so I could move around, although I wasn't really able to do much of that.  During each contraction I was leaning over with my hands on the bed and relaxing my stomach as much as I could.  I don't think it actually took 25 minutes for all that, I think I just got so wrapped up in the contractions I forgot to start timing them again.

When I did start again around 3:45, the contractions were 1:00-1:20 long, still with about 1:30 in between.  I found at this point that I was struggling to get through them without tensing up, so I told Mark that one thing I had wanted to do but never got around to was downloading the Enya song I really like, and asked him to do that for me.  I had been singing it to myself in my head, but thought that having it to really listen to might help me focus on something else.  Of course Mark had never used itunes before, so he was trying to figure it out on the fly. After a few minutes he got it, and then read through the list of Enya songs that came up to see if I knew which one it was.  I didn't know the name off the top of my head, but when he got to it, ("Only Time"), I said "yeah, that's it". I actually did think about getting an epi at this point because I wasn't sure how much longer I could make it if the contractions were going to be this intense.  (for those versed in Bradley, classic transition thinking! and I guess that only lasted about ten minutes, not bad)

When he got to the point though of actually purchasing the song, I told him to hold off, because I wasn't sure, but my last few contractions had felt like I needed to push.  I was a bit taken aback, not really sure why - but I just hadn't felt like I was there yet.  At this point, the last few contractions I timed were 1:10-1:30 long, with about a minute in between.

I told Mark I thought I might need to push.  I guess the nurse heard and called the doctors, because people started filing in within a minute or two.  I felt like I needed to pee again, so got up to do that right after the last contraction I timed which ended at 3:58am.  It was clear when I got to the toilet that yeah, I needed to push.  I peed, and said I needed to poop as well, but they told me not to.  I guess they didn't want me having the baby on the toilet.  *grin*.  I did try once to go, but don't think I managed.  When I got back to the bed, they checked my cervix.  They said I was only 7cm, 100% effaced, and 0 station.  I heard Mark asking what that meant, and they said that the baby is right there ready to come out.  Fortunately they didn't try and make me wait, but said I could go ahead and push.  (Which I was somewhat surprised at!)

So I did.  When Timmy was born, my pushing contractions were right on top of one another so I felt like I barely had time to take a breath in between, so I had purposely read up in the Bradley book on what they recommend for pushing.  You're 'supposed' to take a deep breath when the contraction starts, let it out, take a second, let that out, and then push, so that you're working with the strongest part of the contraction.  I actually was able to do that this time - and apparently it was rather effective, as he popped out with the third contraction (I would say two strong pushes with each contraction).  Mark and the nurses were telling me on the third one that he was almost there which was a big help, as I was able to use that as motivation to keep on pushing.  That last one hurt!  He was born at 4:10, with about five minutes of pushing.  wow.

I definitely pooped with the first pushing contraction, but it was a non-issue (I certainly wasn't going to do anything differently!), they just wiped it right up and put something down there to cover that area, probably to try and keep things somewhat sterile.

When Cameron popped out, what a feeling.  After the head and shoulders, the rest of him just slipped right out.  I asked if we could wait on clamping the cord, but it was already done - it was wrapped around his neck so they needed to get it off ASAP.  His apgars were 8 and 9, and then they brought him right over to me.  I was a bit shaky, I guess from the intensity of the last few minutes of work!

I had a first degree tear, but the docs were happy to wait until I was ready to stitch me up. They also waited until I felt ready to deliver the placenta, also different from Timmy where they pulled to get it out ASAP because I was bleeding more than I was supposed to.  Yet another part of the labor that was more relaxed this time around.  That was interesting, the contraction wasn't nearly as intense as they had been for a while, but it was also a strong sense that I *needed* to push.  So after the placenta, they did the stitching, I think they said about six stitches in my perineal area, where the old scar was.  Once again, the lidocaine shots were more painful than the labor, or maybe it's just that they were a sharp kind of pain versus the intensity of the contractions.  I felt like the stitching was way less uncomfortable this time though.

And then we were done, and I got to hold and snuggle my new, perfect little boy.

Sunday, April 29, 2012

Updates on little C part deux.


Day 2, Thursday:

In the NICU, the whole team of doctors goes and visits each patient every morning, they go over the case, any new findings, and come up with a plan for the day.  I unfortunately missed most of it when they were going over C because I had gone upstairs to pack up my stuff and get discharged.  The upshot was that they had put in for some additional consults; genetics and opthalmology, his repeat CBC showed that his hematocrit was down so they were going to start weaning him from IV fluids and I could start nursing when he was hungry, yippee!  The head neonatologist also said that he wasn't convinced it was the hematocrit that caused the incident the night before, he generally didn't think that there was anything wrong with C, it was just a random isolated incident.

So we got to nurse again around noon, which lasted until 12:30 or so, then I headed out to get lunch.  In the meantime it was a zoo here!  The geneticists came around to check C out, and based on a cluster of observations (ACC, he has a small chin, triangular toenails, long toes, somewhat funky ears) they wanted to do some genome DNA testing to determine if there is an insertion or deletion in his genome somewhere.  They also felt that based on the cluster of "symptoms" he has, it was worth doing an EKG to get a baseline and rule out any issues there, as the heart is often affected to some degree if there is some kind of syndrome.  So that was added to the list of tests as well! phew!

We said fine to the testing, but honestly I don't think it's likely to change anything we do.  More for interest's sake than anything else.

After the geneticists, and once again right when C was scheduled to be taken down for his MRI (finally!), the neurologist showed up again to do a repeat exam.  No changes, so still a good report there.

DH and I ate lunch while the MRI was completed.  The rest of the afternoon was fairly boring, although we did find out the results of the kidney ultrasound, which were that there was significantly less dilation than had been seen in utero, classifed as mild now instead of moderate.  They still want to do some followup tests in a month or so, but felt that at this point there is now no need for prophylactic antibiotices (to avoid UTIs which can be common if the dilation were to have remained moderate), so it seemed like getting to actually pee outside the womb was a good thing.

So C nursed at noon, then again at 2:30.  In order to get him off the IV, we needed to start weighing him when he nursed to make sure he was getting adequate intake.  So for the next session he was weighed pre and post, and took 22mL.  They were looking for him to take 40mL + (1.5oz approx) every three hours, and then they could turn off his IV.

I went home for the first time, to see A&T and pick up a few things.  It was nice to see them, and they were very happy to see me. Well, A was, T was watching TV with his uncle which meant he essentially ignored me :)

Nursed C again when I returned to the hospital, amazingly he hadn't woken up while I was gone, I was expecting that he'd need to be fed at least one bottled, this time he took 26mL.

Day 3, Friday:

Three nursing sessions in the night, 40mL, 40mL and 48mL, so we could be off the IV!  That was confirmed during am rounds.  Which I missed once again as I was out having my breakfast, and they did the kids out of order because one of the nurses wasn't available.  Sigh.  We got re-updated on the kidney ultrasound results, informed that the opthalmologist and EKG were to be done that day, and that they were a little concerned about C's jaundice.

Not much of note happened in the am, just some nursing and sleeping.  We still hadn't heard anything back on the MRI which we were getting antsy about!  Oh, and C's bilirubin levels had come back and had jumped from a 9.8 on Weds to a 16.8, so they decided that phototherapy was a good idea, and also mentioned that the high bilirubin could be causing C to be so sleepy.  (I think at this point he'd been "awake" for a grand total of about 1.5 hours).  So the plan was for me to nurse him, then we'd start the phototherapy right after that.  I left the room a couple of times while C was sleeping to go have lunch, we are not allowed to eat in the NICU rooms, but the lovely hospital lunch I had ordered hadn't arrived yet.  I was *starving*!  The boys and DH showed up at around two, not long after I finished nursing and C was put into his little spaceship.  (In fact what I was doing at the time was lying down on the cot they have and inserting a suppository for my hemmorhoids LOL.  Fortunately Mark was able to hold them off from coming behind the curtain while I finished up, not something I really wanted them to see - boy, the questions!! :))

They were extremely interested in all the stuff in the room - they loved the shades with chains to pull them up and down, very interested in all the buttons, T especially loved the handwashing sink which had footpedals to turn the water on.  I took them out to share my lunch with me which had finally come, and while we were gone the next hoard of doctors showed up - amazing how all the specialists manage to come at the same time!  Another neuro exam (normal again), the ekg tech, and the opthalmologist all at once!  We would get the ekg results later, the opthalmologist said that his eyes looked structurally normal, the only abnormalities he could see were some very small "cataracts" at the outside of his lenses that he thought would likely not affect vision in the least, and some hemmorhaging on the retinas.  We thought that could be related to birth trauma, and he actually came back in a few minutes later to tell us about a paper he had found where all newborns at a hospital were examined, and about a third had retinal hemmorhaging - 75% of vacuum assisted births, 30% of vaginal, and 7% in C section births.  Strongly supporting the idea that this was nothing to worry about.  (he had us a little concerned by the way he prefaced telling us the results, that sometimes things were noted on exams that could be a bit scary sounding...!).  So we took that as generally positive news as well - but yet another followup!

After all that hustle and bustle, the nurse suggested I pump and we bottle feed C so that he could spend as much time as possible under the lights.  So I did (got 100mL this time!!!!!) and then while C was napping under the lights, the boys, DH and I went out for dinner.  During dinner, two different neurologists called to tell us about the MRI results - GOOD NEWS!  They did not find any additional abnormalities, just the missing corpus callosum.  And in fact they did see a few fibers crossing between the two hemispheres, that were apparently what should have turned into the CC but didn't.  So they were pleased to see that as well, because they felt that it was better that the CC just didn't develop, vs. having developed but then been destroyed somehow.

DH took the boys home after dinner, and I went and hung out with C.  He was weighed again (the NICU isolette actually had a built in scale, so we could weigh him directly in there - you lift the baby up and tare, then put him down and weigh, then lift up again, I guess for confirmation.  Pretty cool) and came in at 7lb6oz, so down only two from birth!  I guess the combo of IV hydration + my milk already being in meant that he was already gaining weight again).

When I got back to the room there was a doc there, and she told me that the EKG was overall normal, but that there is a very small hole in between the two ventricles, called a VSD.  She told me that it's something that a lot of kids have, and it normally closes on its own over time.  So yet another followup appointment!

I had a couple of friends come over for the evening to keep me company, which was nice, as C had to be under the lights.  I did take him out to nurse him, so they got to hold him for a few minutes.  They noticed that when they were holding him and I was speaking he was very still and quiet, but when it was the two of them talking he was more fidgety.  Interesting!

The nurse fed C his bottles, so I got a nice six hour stretch of sleep that night.

Day 4: Saturday

Our hurdles today were a car seat test (normally just required for smaller infants, but because of the apnea episode, they wanted to check that he didn't have any trouble breathing in his carseat.  The nurse actually really liked his seat (the Br!tax Companion) because it did not put him at an angle that would lend his head to falling forward.  And he passed the test with flying colors.

Last hurdle was another bilirubin check at noon.  They were looking for it to have gone down from the 16.8 the day before. It had, but barely!  Just 15.8.  They did say it was okay for us to go home, and just went over the warning signs of severe jaundice with me.  (Lethargy, no peeing or pooping for 8 hours, lack of interest in food).  Told me that it wasn't okay to wait for our first pedi appointment until Tuesday, that we should either go today or Monday.

The rest of the family arrive at about 1:30, and we were all ready to go - of course as usual it seemed to take *forever* for the paperwork etc. to get done, so we didn't get out of there until 3:30, when we were all feeling quite antsy.

So all in all, quite a few adventures, but really, mostly good news aside from a few minor issues that probably happen in lots of kids but no-one knows because they're never checked.  But here are all our followups:

Neurologist
Neuro-opthalmologist
Urologist
Cardiologist
Regular pedi apt

We're going to be busy in the next month!

Day 5: Sunday

So nice to be home!  C is nursing really well, every 2-3 hours, and I feel like he's doing a pretty good job of emptying me on at least one side, so based on how much I was pumping, that means he's getting probably around 50mL per session, which is great.  I have been weighing his diapers, he had 8 diapers today, all of which had pee and poop, and they weighed an average of 47.5g (confirming the ~50mL per nursing session, as generally what comes in goes back out).

Saturday, April 28, 2012

Update on little C.

Our post-birth hospital stay has been somewhat more eventful than with the other two boys.

Day 0:

Little C was born at 4:10am on Tuesday 7lb8oz, 20.5".  We weren't able to do skin to skin immediately because the cord was wrapped around his neck, but he was given to me pretty quickly.  We made a first attempt at nursing sometime between 5 and 6, after they'd finished sewing me up and I'd delivered the placenta.  It went okay, we were able to get a decent latch, but he didn't suck all that much.

After that, he slept and slept and slept.  The pediatrician came by to do a newborn check, and he passed with flying colors.  But, in the midst of her exam, he threw up a whole bunch of clotted greenish brown stuff.  Thank goodness she was in the room at the time, it would have freaked me out!  They took the clothes away for some testing, and found that it was blood, most likely ingested during delivery.  Also a likely cause for him not wanting to eat much, as his stomach was already full!  That was probably around 10 in the morning.

The neurologist team (attending, fellow, resident, med student was my impression) came by to examine him, and all the reflexes and things they checked were also normal.  Also good news :)

A few checks of his temperature were on the low side, so we did some skin to skin, and after that didn't work, he had to go under the warming lights.  As he was not eating often (we did attempt a few times, but he was just fast asleep), the nurse suggested that I pump and we try and syringe feed him.  So I did, and amazingly got about 10mL out of each side!  I had no idea there was that much colostrum in there; everything you read says it's very small amounts. They checked his temp, and it was low for the fourth time, which they found concerning.  Particularly because I was GBS positive and did not get the full dose of antibiotics, they wanted to be proactive in treatment, so decided to start IV antibiotics.  Apparently in infants their temperature goes down with an infection rather than up, who knew!  We syringe fed him while they were putting the IV in, which really helped calm him down (although he really was a champ through the ordeal, barely made a squeak!).  They also took blood to do a bacterial culture, complete blood count (CBC) and blood sugar (which was low).  He took a total of about 8mL.  He finally woke up again around 11:30pm and nursed reasonably well.  CBC came back with low platelets but otherwise normal.

(funny, I'm already having trouble remembering some of the sequence of events!)

Day 1, Wednesday:

Started out relatively uneventful.  We syringe fed C again at around 6am as he still hadn't woken up again, took ~6mL.  FINALLY at noon he seemed hungry, so I nursed him.  We also had the kidney ultrasound scheduled at 1pm, so it was perfect timing.  Of course, when it rains it pours, and right before the nurses and DH were taking C to the ultrasound, the neurologist showed up to examine C.  He also didn't find anything that concerned him.  More yay.

DH said that C was actually awake most of the way down to the ultrasound, but nice and cooperative, and they were able to get the images they needed.  Unlike in the OB office, you don't get your own monitor to watch, and the u/s techs aren't supposed to tell you anything, so all he managed to get was that the one kidney was measured at 4.73cm.  (I had no idea kidneys were so relatively big!)  Didn't see them measuring the dilation at all.  So that test was finally checked off the list.

After that, C nursed nicely from 2:30-3:30 (with Uncles J and K visiting, that was mildly awkward for me, lol), 4:50-5, 6:30-6:40.  At that point I wanted to take a shower, so I sent him off to the nursery.  DH was home with the other boys, and I didn't feel comfortable leaving Cam alone in the room (the bathroom was right there, but still I couldn't necessarily hear him if he started crying, or hear if someone else came into the room).  When I was done in the shower I popped over to the nursery to get him, and found that they were in the middle of his antibiotic infusion.  He was acting hungry again, so I nursed him from 8:30-8:40 or thereabouts.  Afterwards he needed to be weighed, so the nurse took him and got that accomplished.  (7lb1oz, so a drop of about 5%, not too bad).

When she was dressing him again, all of a sudden he turned a funny color.  She mentioned it, I agreed, and asked if he was breathing.  She responded, "NO", and immediately picked him up and went to get oxygen.  She sent me to get another nurse, fortunately there was a nurse and a pediatric resident right outside the nursery door.  DH was asking later, why did she send me to get help rather than pressing a button or something to call people - my friends suggested maybe she just didn't want me to see anything further!  By the time I got back in there with the other two he was looking pinker, but still taking very shallow breaths.  Within another 30 sec to a minute he was back to normal again.  Thank *goodness* it happened with the nurse right there!

They then paged the neonatologist on call, who was there within two minutes.  He took a brief case history, and told me he would talk to the NICU team to decide where C should go, because clearly it wasn't safe at that point for him to be in the room with me in case another incident occurred while I was sleeping.  He thought that C would probably go to the "special care nursery" with full time monitoring by a nurse, but when he returned he said that given the ACC (agenesis of the corpus callosum), and the fact that his blood sugars and temps had been low, they would feel more comfortable with us going to the NICU.

While they got him prepped, I went back to the room to grab some stuff and to call DH and let him know what was going on.  I couldn't get it out without sobbing; once that started I made sure to let him know the most important thing - C was OK!  I can only imagine how scary it must have been for DH, getting a call from me where I started to tell him about C and then burst into tears!  I eventually managed to get it all out.  It really was absolutely terrifying seeing C go that funny color and realize that he wasn't breathing.

When we got down to the NICU they immediately wanted to run some more tests, which meant more heel pricks for poor little C.  Another CBC, a chemistry panel to check on kidney and urine function, and another blood sugar.

The CBC results showed a high hematocrit (red blood cell marker), so the attending wanted to start Cam on IV fluids (nutrition and hydration) - the thought was that the excess red blood cells could be making the blood thicker, harder to get where it needed to go, which could explain the sleepiness, low blood sugar, low temps, and potentially the apnea.  It was nice that the IV line was already in from the antibiotics, so they could just start pushing fluids.  And then we finally both got to go to bed!  Actually not true, I pumped again (40mL, around 1.3oz), THEN got to go to bed.  But because he wasn't nursing I got a decent six hours sleep before I got up to pump again (up to 2oz).  I already felt like my milk was coming in so I wasn't worried about my supply!

Days 2+ coming!  (This is getting a bit lengthy!!)

Friday, April 27, 2012

Birth story Part 1


I feel like things got started at my doctor's appointment Monday morning. We had a biophysical profile done, which Truffle passed with flying colors - it sounds like the hardest thing for a lot of babies is the practice breathing, which he had been doing at every u/s since 31 weeks, so we got those points almost immediately. Kidneys were slightly more dilated, but still not affecting the structure, so the doc saw no need to move up the planned induction date (Monday 4/30). After that I saw my doc, we talked about what the plan for induction would be, and she wanted to check my cervix to give us an idea of how that might go. At first she said, 'closed, 50% effaced, and soft'. Then she shoved her finger in and said, "OK, 1cm".  And that, my friends, was the beginning of the end :)

When I got home after that, I hung out on the couch for a while playing a phone game, and noticed a few contractions somewhat more uncomfortable than I had been used to. I started timing them, but they were pretty inconsistent - some were five min apart, some fifteen. Got up after a while to do some stuff around the house and they went away. I continued to feel them intermittently during the day, mostly while sitting down, not so much while up and about.

In the evening, DH and I finished putting up the valances in Truffle's room, and then I cleared out all the boxes and other junk that was still in there.  After that I went downstairs and we started doing dishes and cleaning up.  A bit later than I had wanted to get to bed, but that's about par for the course.  I had been feeling some contractions here and there, but when I timed them they were still all over the place.  When we were almost done I was standing in the kitchen and felt a sharp pain in my cervix, which made me go "oooooooh", and then a big gush!  Classic!  If I hadn't been wearing a pad from the cervical exam there very well could have been a puddle on the floor.  It was enough to completely soak the maxi pad, as well as my undies, and a bit got on my pants.  Time was approximately 12:35am.

Well, that did it.  I immediatly started having contractions, timeable, lasting about 20 sec each with 1:45 in between.  I knew we needed to get to the hospital in relatively short order to get the antibiotics started for the GBS - plus we were hoping not to cut things quite as close as we had with Timmy.

Called my mom first to have her come over to stay with the kids, then my sis, who had wanted to be in the room when Truffle was born.  Unfortunately she had a raging sore throat and knew she had a cold coming on so not a good idea.  Made us both sad, I was looking forward to sharing the experience with her.  Finally, I called the baby hotline and let them know my water had broken, and they agreed we should come on in.

We got our toiletries together, packed the last few things we needed, got lunch ready for the kids to take to school the next day, walked my mom through everything she would need to know, and were in the car at 1:38.  Contractions were still 20-30sec long and 1:45 apart. (So the start of one ctx was 1:45 after the end of the previous one).  I was still able to easily walk and talk through them.

The car ride was much more calm than when T was born, when I was into transition.  I was texting and posting a couple of messages in between contractions, I did have to start to close my eyes and consciously relax through them, they had lengthened slightly to 30 sec, and about a minute thirty in between.  (contraction timer apps are so cool, especially to a data freak like me!)  We arrived at the hospital at 1:59am.

(Side note - I guess I was probably right when I was in labor with T that my ctx were 20-30 sec long and 2-3 min apart when I started really contracting.  I always wondered based on how quickly things went after that if I had mis-timed them, as I was just counting in my head.  Really does go to show that they don't always NEED to be a minute long to be doing something!)

To be continued...

Wednesday, April 25, 2012

He's here :)


little C was born at 4:10am 4/24/12.  So yeah, fast labor!





More coming soon :)

Tuesday, April 24, 2012

baby day!

dh and i were doing dishes and getting things tidied at about 1235, when all of a sudden i felt a sharpish pain in my cervix, i said, "ooooh", and next thing i knew, a big gush of fluid? fortunately i was wearing a pad as my doc had done a cervical exam in the am, andhelped me go from closed to 1cm. pants still got wet tbough.  anyway, ctx since then have been about 1:45 apart, lasting 20-30 sec. so we"re on our way to the hospital. expect truffle will be making his appearance in the not to distant future :-)

(posted from my phone, hence the typos)

Friday, April 20, 2012

"Overdue"!

Well, who would have thought, three short months ago, that I would have made it past my due date? I certainly didn't.   But yet here we are.  40w2d today, and no signs of a baby being imminent.

I've gone through a lot of emotions since we found out baby Truffle is missing his corpus callosum.  Three weeks ago, people were asking me if I was excited to meet him and I found that I couldn't honestly answer yes.  Just too many unknowns, what-ifs, thoughts about how different our lives may be from what we had hoped / imagined.

But now that we're here, at the end, I find that I am able to let all those worries go - and I'm just looking forward to meeting our last little boy.  Looking forward to labor, delivery, getting to hold and nurse him for the first time, and SO much looking forward to introducing truffle to his brothers.  They are on pins and needles waiting for his arrival.

I will definitely keep you posted!

Tuesday, April 03, 2012

Recovery from restricted eating.

This is a really excellent blog post on recovery from restricted eating.
http://www.gwynetholwyn.com/blog/2011/9/13/phases-of-recovery-from-restricted-eating.html

I think for many of us who are/have suffered from hypothalamic amenorrhea, even if we didn't have an eating disorder per se, we certainly had disordered eating.  Restricting to a certain (too low) number of calories, avoiding fats, eating an extreme amount of fiber - all behaviours that we have been told are "healthy", but taken to an extreme definitely become unhealthy and detrimental to not only our fertility, but in many cases our lives in general.

One thing that has been a common theme in the posts from women who have recovered from HA on the fertilthoughts forum, is how much more enjoyable their lives are when there isn't an unhealthy compulsion to get to the gym *every* day no matter what, how much freer they feel when allowing themselves to enjoy eating and not worry about every single extra calorie that goes in.

And also, how everyone worries that their weight will balloon out of control and they'll go from one end of the spectrum to the other.  It doesn't happen - our bodies have a happy weight, and even when you eat a lot more than you're used to, it seems to somehow settle there - and at that happy weight, things like hair, nails, sex drive, and fertility are all markedly improved.

This article provides a lot of food for thought - even if some of the references to an eating disorder don't fit, there is much in there that rings true for me.  Worth a read!